I cannot honestly say enough about our experience with the team at Wedgetail and the palliative support that was given to my mum and by extension me as her carer during her final days.
Like most people that are faced with the realization that they or their loved one needs palliative care we were scared, and totally unsure of what to expect. I felt that I was failing my mum by not being able to care for her at home and mum felt she was giving up on her fight for me.
We were both very concerned about leaving the familiarity of her home to move to a level of care and what we feared would diminish her independence and autonomy. Our greatest fear was that she would end her days in an impersonal facility where her choices about everything from pain management and daily routine to what she could eat would be taken from her.
On the day my mum was transported to Wedgetail her condition was extremely dire, she had been vomiting for days, her pain management was completely out of control, she was painfully thin, her vitals were at dangerous levels and she was honestly just hanging on. It was a very frightening time for all of us and we didn't know how long she had or what we were to expect.
And this is where the story turns.
Within days of arriving at Wedgetail my mum was stabilized, her pain management was under control, she was eating wonderful home made food, she had a sparkle in her eye, she was sleeping and most important, she was at peace. I remember her telling me, "this is where I want to be Kate, I'm happy and I'm safe here, it's going to be OK". That day the nurses moved a cot into her room for me to sleep beside her and that is where we stayed, until she passed.
Wedgetail felt like our home while we were there, we enjoyed long afternoons watching the sunset, playing cards on the deck, laughing with the nurses and many visitors and just being together for the precious time we had left. Volunteers cooked honestly delicious meals and looked after our practical needs so I had the space to care for mum in the ways that were meaningful to me without feeling exhausted and overwhelmed with having to do more than I could manage. At night I was able to cook some of my mums favorite meals and enjoy them with other families and patients that were staying there at the time and that companionship with others that were sharing our pain was healing for everyone.
Honestly the time we spent together at Wedgetail was nothing short of magical. I know that is a strange way to describe it but it truly was. The nursing staff are amazing, they are honest, they talked constantly with us about everything we wanted to know, and they give me and my mum clear information that allowed her to feel in control of her own care, and they bolstered her enough to give us several weeks of clear pain managed time to come to terms with our situation on our own terms.
Volunteers came and played piano as the sun set, gave haircuts, massages, and taught art classes, a horse literally come to visit my mum in her room, dinner parties were had, we even had a couple of surprise breakout trips to the markets in wheelchair accessible transport arranged by the nurses. Nothing was too much trouble and everything was meaningful.
When the day came that my mum did succumb to her cancer she wasn't scared and neither was I, she was at peace, and she was comfortable, and so much of that I have the staff at Wedgetail to thank for. From our social worker, to our incredible volunteers that prepared meals and kept everything running, to the honestly saintly nurses, and of course Meredith and the board my mum and all of the other patients I met during our time at Wedgetail could not have been cared for better.
It has been almost two years now since my mom passed away and while there will always be a pain of loss when I think of her I am also blessed to feel a softness in my heart, and pride that I was able to care for my mum until the end in the way that she needed because of the people at Wedgetail.
Kate 2019